Repository of Research and Investigative Information

Repository of Research and Investigative Information

Rafsanjan University of Medical Sciences

A health profile of adults with multiple sclerosis living in the community

(2008) A health profile of adults with multiple sclerosis living in the community. Multiple Sclerosis Journal. pp. 1099-1105. ISSN 1352-4585

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Objective To describe the frequency of impairments, disabilities, and related services used in a community sample of adults with multiple sclerosis (MS) to estimate the service needs of this population. Methods A community-based postal survey conducted using a self-completion questionnaire consisting of MSQOL-54 questionnaire, Nottingham Extended Activities of Daily Living (NEADL) and some demographic items as well as items to ask about MS-related symptoms and/or problems and using available services. Adults with a diagnosis of MS confirmed by a neurologist were recruited via primary care services in Southern Derbyshire, UK. Results Questionnaires were sent to 310 adults with MS and 201 completed questionnaires were returned - a response rate of 65. The most commonly reported symptoms and/or problems were fatigue, sexual problems, urinary problems, and painful muscle spasms. Most respondents reported at least one contact with their general practitioner (GP) during the previous 12 months. However, contacts with other services potentially able to alleviate specific symptoms and/or problems were low. Conclusions The findings suggest under-use of existing health care services by those who experience potentially treatable symptoms and/or problems associated with MS. More needs to be done to raise awareness among people with MS and their carers about the services available to them. Given the very high proportion of people with MS known to make contact with primary care services, GPs have a vital role in providing this information.

Item Type: Article
Keywords: disability health services multiple sclerosis unmet need disability physiotherapy dysfunction services fatigue trial falls Neurosciences & Neurology
Page Range: pp. 1099-1105
Journal or Publication Title: Multiple Sclerosis Journal
Journal Index: ISI
Volume: 14
Number: 8
Identification Number:
ISSN: 1352-4585
Depositing User: مهندس مهدی شریفی

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